About QCPOR
Why Quality of Patient-Centered Outcomes Research Partnership Instrument?
Incorporating engagement approaches into patient-centered outcomes research/community-engaged research (PCOR/CEnR) in scientific studies produces more relevant research, increased uptake of research findings, and better clinical outcomes compared to traditional research. While research studies that engage participants produce more relevant outcomes, engagement can often leave patient partners feeling overburdened and disenfranchised. These effects can be compounded in historically underrepresented and/or disadvantaged populations but can be difficult to track or quantify. An accountability tool called the QPCOR was created to monitor equitable research partnerships. QPCOR is designed for anyone to complete it, as it does not require a postgraduate degree or even a high-school diploma to be able to read, understand, and confidently answer the survey questions.
The Science of the Quality of Patient-Centered Outcomes Research Partnership Instrument
The development of the Quality of Patient-Centered Outcomes Research Partnerships Instrument included an iterative co-production process with psychiatric patient stakeholders and scientists, including item formulation, followed by two phases of cognitive interviews with psychiatric patient stakeholders to assess and refine instrument items. A pilot study was conducted to assess acceptability and feasibility. The pilot study of the Patient-Centered Outcomes Research Partnerships Instrument suggested feasibility and acceptability among psychiatric patient stakeholders. The Quality of Patient-Centered Outcomes Research Partnerships Instrument may be a valuable tool to enhance the quality of community engagement research practices. We are currently testing the psychometric properties of the QPCOR.